Is a baby with spinal muscular atrophy in any pain? Well the unfortunate answer to this question is yes. SMA only affects muscle, the senses all develop normally. With Katie, I had to make myself believe that her tiny little moans and cries were just her way of communicating, but it is very for me to watch video of her "talking" now without crying. I have a more realistic perspective now. I did everything that I could do to try to keep her comfy in her body. I massaged and moved her legs like she was peddling a bike almost non-stop. I gave her Motrin and homeopathic remedies for "gas” when she seemed really uncomfortable. I used onion, potato and lemon poultices (onion, potato and lemon rapped in cheese cloth and placed on her chest) to help keep her airway and chest clear. I so desperately wanted to find an acupuncturist or naturopath to try to help her, but my time  and brains were taxed by Katie and her big sister. I was given morphine about a week before she died and encouraged by my hospice team to "try" it to make sure there were no adverse affects, but I was never able to make myself administer such a powerful substance to my baby until her last day, and before we "pulled" the oxygen, we made sure she a full dose so that she would pass a peacefully as possible.