Yes. There are a few Type 1 Children who survive. I think hope and in most cases faith have a lot to do with it. In most cases, life support mechanisms’ are in place, feeding tubes and tracheal tube or BiPAP is used.

I chose to avoid these devices. In my mind, since Katie was still in infantile development with normal sense development and cognitive ability, I could not bear the thought of her being subjected to surgeries, hospital stays and foreign objects being place in her body.  It was my understanding and belief at the time that she had no chance of survival.   I was not going to subject her to unnecessary medical procedures and medicines that may prolong her life, but ultimately offered no cure for SMA and would possibly cause more discomfort and chance for infection.